Women’s Health

Women’s Health– It’s time to stop living with it

There is significant gender inequality in healthcare and it is time for this to change.

Medicine has been developed with male physiology as the default. This is reflected in medical training, approach to diagnoses, and therapeutic development. As a result, men and women have very different health outcomes. Whilst women live longer than men they live in poor health for significantly longer.

The UK currently has the widest gender health gap of all the G20 nations.

Half the world’s population are women, yet women are not represented equally in clinical trials even in diseases which affect men and women equally – even less so in areas which disproportionately impact on women such as dementia which women are twice as likely as men to develop.

Why Us?

We believe Women in Data can redress the balance as the challenge is data, and we have the skills. This is not for profit, by women, for women, and therefore women will trust us with their data to make progress in this critical area.

We are a 60,000 + network, we have a core focus on diversity to ensure we take an inclusive and intersectional approach to what we do. Most importantly, we have the passion and determination to make a difference in this space.

Our work is driven by a fantastic, committed SteerCo, supported by our partners, NCR, Boots and Included and championed by Ambassadors like Dame Clare Gerada, President of the Royal College of General Practitioners.

Our Approach

Like any good data project, our approach is agile; to gain user insight, break the problem down to the smallest possible question, run a proof of concept before looking to scale. In parallel, we are building a community, driving education and awareness of women’s health issues to ensure the project can be successful in the long term. 

Establishing the hypotheses:

We have reviewed the research and engaged multiple groups of women to crowd source the issues which matter the most: we have established a number of key questions which we believe data can address.

Developing the data pilot:

We are now in pilot phase, bringing together a range of data sources from retail, to health, to demographic and economic data.  We are looking to mine the data against our hypotheses.  We will establish the right data method to shed light on these questions and prove a scalable methodology to tackle more and more complex challenges in this space.

Ultimately our ambition is to:

  • Provide insight to inform government and healthcare institutions on focus areas for clinical trials and other research
  • Remove the taboos around discussing women’s health by bringing communities together
  • Provide supportive guidance to individuals, enabling them to better navigate their experiences
  • Provide supportive guidance to organisations to enable them to better address the impact of women’s health on their workforce

This will help close the gap for future generations of women and make living with the impact of women’s health that bit easier for this generation.

 

We organise and run workshops in workplaces and community groups to build understanding, raise awareness, and understand the issues that matter most to women to feed into our data solutions roadmap. We are creating communities through bringing people together, sharing experiences and being able to support one another. We provide information packs and recommendations for employers to better support women’s health in the workplace.

If you are interested in running a workshop in your place or work or community please Get Involved here.

Data Solutions

We want to use data to begin to provide insight on the key questions we have captured through our community workshops. We want to start small and prove a method which can be scaled up to tackle many more questions across the women’s health spectrum.

The aim is this will influence future clinical trials, research projects, and provide better information to individuals and companies.

We are working on the following:

  • A pilot – We are starting with a limited data set through our partnerships with NCR and Boots to prove our methodology.
  • We will map how we will scale beyond the initial pilot addressing the following types of questions:
  • What is the existing data landscape, where is the data we need?
  • How do we set up a data trust/equivalent to ensure data security and governance at every stage of the programme?
  • What will the sharing protocols etc. be, given we want to be working with multiple entities?
  • What infrastructure do we need and how will we partner or build it?
  • We will run a number of hackathons to support across all strands.

Campaign

We are building a movement to campaign for change, understanding our key stakeholders and building relationships, increasing awareness and using our data insight to influence policy makers, healthcare professionals and businesses.

Intersectionality

It is critical that we consider the intersectionality of what we do and are conscious of the different ways that women’s health issues affect different communities. Whilst this does not mean we will be able to tackle everything at once, we want to ensure we are considering intersectionality in all we do, understanding the biases and limitations of the data with which we are working, and engaging as many communities as possible. We are partnering with Included as our expert adviser in this space.

Data Governance and Ethics

We will use The Good Data Guide to guide all that we do. We need to create the framework and rules for the way in which we store, share and govern data.

Fundraising and data partnerships

As we look to scale beyond the pilot, we will need to secure both funding and pro bono services to support us. For example, creating a data trust requires specific legal and other professional advice to give users the confidence to trust us with their data. We will also need to secure additional data partners who are prepared to share their data safely and securely with us to enable us to scale.

The Women’s Health Team

ncramp

Natalie Cramp
Chair – Women’s Health at Women In Data®

MCMJONES Photo Biog

Monica Jones
Chief Data Officer, UoL
Associate Director, Health Data Research (HDRUK)

Emma Duckworth

Emma Duckworth
Head of AI & Data Science

Doug Brown

Doug Brown
Chief Data Scientist

Robert Bownes

Robert Bownes
CEO, Old Street Communications

Krupar Suthar

Krupa Suthar
Research Leader

Lydia Collins Headshot

Lydia Collins
Diversity and Inclusion Consultant

Roisin McCarthy

Roisin McCarthy
Founder, Women in Data®

Fiona Sweeney

Fiona Sweeney
Partnerships Director, Women in Data®

Juliette Scott

Juliette Scott
Deputy Chair – Women’s Health at Women In Data ®

Katherine Church portraits162073 HR

Katherine Church
Women’s Health and Femtech Specialist

Heather Wade portraits;
Chicago Booth Campus;
St Paul's, London;
15th December 2023

© Pete Jones
pete@pjproductions.co.uk

Heather Wade
Researcher

Jane Crowe

Jane Crowe
Data Institutions Programme Lead, Open Data Institute (ODI)

CathyArnoldWiDpic(1)

Cathy Arnold
Head of Data Services at the University of Leeds

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Michelle Conway
Lead Data Scientist – Lloyds Bank

PriyaRadia

Priya Radia
Diversity & Inclusion Consultant

We couldn’t do any of this work without the support of our sponsors.

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      With more than 15 years’ experience in leading private, public and third sector organisations through significant periods of innovation and change, Natalie has spent the last 5 years leading a data consultancy. Here she supported organisations in all industries to understand and deliver the potential of data and AI. She is passionate about the potential of data to solve problems, but to do so ethically, and in her time at Profusion created The Good Data Guide to support organisations to navigate this difficult challenge.

      She is a regular speaker for Vistage, delivering training to C-suite leaders in understanding how to create value from data and AI for their business. Natalie is a recognised leader in the data field, having won multiple awards, and takes an active role in the data community, chairing a cross-industry Data Ethics Advisory Board, chairing Women in Data®‘s Women’s Health work and being on the Mayor’s Data for London Advisory Board.

      Harriet Waite is an Executive Assistant to the CEO at Profusion and the secretariat to the Women’s Health Board. Whether orchestrating complex schedules, spearheading critical projects, or representing the CEO’s office with poise and professionalism, Harriet is making the impossible possible. She combines a strong organisational acumen with exceptional interpersonal skills, ensuring seamless operations and effective communication at the highest level. Possessing an innate talent for multitasking and prioritising, Harriet excels in coordinating extensive travel arrangements, and orchestrating intricate meetings and events with precision and finesse. Her infectious enthusiasm and positive attitude have created a harmonious work environment, fostering collaboration and driving team synergy in Women’s Health workshops and steering meetings. Harriet liaises with stakeholders at all levels, ensuring seamless collaboration across departments.

      Harriet hosts Women’s Health workshops and briefing sessions allowing third parties to deliver workshops and collate data for our mission. With her insatiable curiosity and a boundless well of creativity, she is always exploring innovative solutions and pushing boundaries. She ensures we stay at the forefront of industry trends, enabling the team to bring fresh perspectives and ideas to the table. Harriet thrives on finding imaginative ways to tackle challenges, often thinking outside the box and introducing creative approaches to women’s health challenges.

      Prior to joining Profusion, Harriet spent two years working and travelling Australia and her passion includes visiting new countries, experiencing different cultures and trying new foods.

      Monica Jones BSc (Hons) PGCE PGDip MBCS CITP MInstLM

      Monica Jones is the Chief Data Officer for the University of Leeds and Associate Director for Health Data Research (HDRUK), based in Leeds in the UK.

      A technical expert and leader with extensive education, science and technology, healthcare knowledge and experience. Highly skilled CDO / CIO and Enterprise Architect with a proven track record of designing and delivering complex, high value solutions to exceptional standards. Many years’ experience defining strategy and directing, current and future, Information and Data Systems.

      An effective communicator used to working on major public and private sector initiatives, who is able to integrate teams to achieve their maximum potential. International clinical terminology and data standards (SNOMED CT, ICD-10, HL7 FHIR, OpenEHR) expert promoting safe and effective information for better outcomes. She is the Chair of the Design Authority (DA) and Scientific Committee for HDRUK North.

      As Managing Director for Animo Consultancy Ltd she provides specialist technical and advisory consultancy services for HDRUK, CRUK, MRC, Genomics England, NHS, MOD, MOHW; as well as executive coaching and mentoring.

      Heather focuses on connecting people and data to value. She has spent the last 15 years advising FTSE-100 companies, start ups and private businesses within data, AI, analytics, research, technology and digital transformation. She has worked across 3 continents and multiple industry sectors and particularly enjoys building high performing teams. Her drive for inclusive and diverse workplaces has led her to MenopauseX, where she is focused on getting the right solutions to employers and employees to create measurable value for both. She acts as the connection point between MenopauseX and the broader Women’s Health Pillar.

      Emma Duckworth built the global team of data scientists and machine learning engineers at Haleon, the world’s largest consumer health company, in the run up to the de-merger from GSK. She now leads the team who are focused on delivering everyday health with humanity and trusted data science through AI/ML products and innovation in marketing, R&D and supply chain.

      Emma is a mathematician by background, she has a masters in Applied Mathematics from LSE. The love of maths was translated into a drive for understanding consumers and delivering value with data science through her 10 years of experience building innovative products in both large corporates and start-ups. Her work has spanned retail, financial services, insurance, utilities, charities and hospitality, with using data to drive competitive advantage a common theme. At Haleon she now takes start-up culture of pace, research and innovation and applies it at scale to a global organisation. This year she has been recognised as one of the Women in Data 20 in Data and Tech and as a Rising Star in the DataIQ 100.

      She is passionate about Ethical AI and the importance of using technology responsibly. A key component of developing AI systems responsibly is embedding principles and standards for transparency, model explainability and for evaluating potential bias of training data. This is particularly important for industries including healthcare, where there has long been systemic bias in healthcare systems, with women underrepresented in almost every aspect and as a result underdiagnosed and underserved. With recent advances in data, technology and AI, we have an opportunity to start improving underrepresentation of women and the subsequent health outcomes. There is also a risk that without active effort, historic biases will be reinforced in systems, so now is a critical time to be focusing on women’s health and the role of data in healthcare.

      One way to help mitigate for bias is to build diverse and inclusive teams. At Haleon Emma introduced the Data & Analytics apprenticeship program, and championed partnerships such as Teens in AI to encourage more people from a wide range of backgrounds to join the field of Data Science, Machine Learning and AI.

      Emma believes data science is a critical tool in solving some of the world’s biggest challenges, from health inclusivity to sustainability. It is so exciting to be part of a global wave of innovation and critical that teams who are reflect all of us are working on new solutions.

      Chief Data Scientist and Vice President of Data and AI specialising in Data Analytics and AI with extensive experience as a Digital transformation consultant at big four IT advisory firms and start-ups using data as a force for good. Practical experience in leading and delivering complex business change and big data projects/teams, successfully implementing award winning Data AI and cloud technology digital projects and in establishing multi-million-pound consulting practices delivering to global corporate clients. Formerly held a variety of senior management and executive consultancy/programme roles at Capita, E&Y LLP, PwC LLP, IBM Global Services, Wipro Technologies, NCR and Zurich Financial Services and has achieved ACII, MSc and MBA qualifications as well as lecturing at Cranfield University. An active member of market disruption Boards and advisory bodies such as being a participant on the All-Party Parliamentary Group on Artificial Intelligence. Author of several social media articles e.g., Wired and white papers on Data and AI as well as being a co-author of the pioneering book, Data Alchemy: The Genesis of Business Value.

      Robert Bownes in the CEO of Old Street Communications, a PR agency for fast-growing tech startups. He is one of the UK’s most experienced tech PR professionals with his views on PR and the tech industry published in outlets including PR Week, TechCrunch, The Daily Telegraph and Tech.EU. In a fifteen-year career, Robert has led a number of award-winning PR campaigns for a range of global companies and many of Europe’s most innovative companies. He has worked with tech companies including Eventbrite, Samsung, eBay, WhatsApp, Zendesk, SumUp and Waze. In 2022, Old Street Communications was named by leading European tech publication Silicon Canals as one of the UK’s best PR agencies for B2B tech startups.

      Robert graduated from Durham University with a degree in law.

      Krupa is a Research Leader, Coach for Women of Colour, Podcast Panellist and Women’s Health Advocate.

      Krupa has lead research across EMEA for World leading companies including: Mattel, Heathrow, Disney, Intercontinental Hotels Group & most recently has been working with UKHSA (formally Public Health England and Department of Health & Social Care) as a Deputy Director of CX Strategy & Head of User Research, scaling and leading a team of 40 User Researchers for NHS Test & Trace. Krupa particularly enjoys breaking down silos and connecting insights teams together to work holistically in order to have a 360 view of the Customer.

      In addition to daily work responsibilities, Krupa is a Psychological Behavioural Coach & mentor for Women of Colour, working with them to surpass their own expectations and reach their full potential. Through her extensive experience in Health Research and her own health challenges, Krupa volunteers her spare time as a Research advisor & is a steering committee member for a leading UK Women’s Health Strategy, spear-headed by the Royal College of GPs.

      She’s also a panellist for a leading Health Tech podcast where she brings her experience of Research, CX and Women’s Health together. Krupa uses her social media channels for good, educating on Research methods and techniques, Coaching and Women’s Health.

      Hi, my name is Lydia and I am – amongst other things – a diversity and inclusion consultant and disabled activist.

      I joined Included in 2022 and support the delivery of client work across the 5 key Service areas, and co-lead our leadership work, which focusses on behaviours and culture. Previously, at Pearson, I was involved with D&I initiatives and Pearson Able (for employees devoted to the inclusion of Disabled people).  Outside of this, I co-created a community of learners and activists as part of community group EDIT (Equality, Diversity, and Inclusion Thread), running workshops on various topics including; microaggression, loneliness, and accessible activism.  ​

      I led the Global Changemaker Award winning Imagine a Day Team as UK Manager, and delivered applied performance and social good projects in Kosovo, Brazil, New Zealand, and the UK. In Kosovo, this was the first inter-ethnic post conflict resolution workshop of its kind, and I later presented my research on this project at the International Drama in Education Research Institute conference in Auckland.​

      I have 5 years of experience as an Associate Lecturer across 3 courses at UK universities. I was awarded an Associate Fellowship of the Higher Education Institute for my work, with special acknowledgement for my work in improving and embedding diversity, accessibility, and inclusion across these courses.

      As a disabled person, experiencing complex chronic illnesses, mental health conditions, and neurodivergence, I can see and experience the day-to-day effects of health inequality around me. We have to understand the intersectionality of health inequality, and understand that people’s quality and length of life is utterly intertwined with bias. We have so much work ahead of us to unravel this. Everyone should have access to safe, fair, affirming, accessible, and compassionate healthcare that addresses their needs without bias.

      The incredible talent and spirit within our community, keeps us focused to deliver bigger, bolder and brighter opportunities for female data practitioners everywhere!

      Roisin founded Women in Data® in 2015. The impetus for Women in Data and its first 100-strong event at UCL originated in Roisin’s shock and disappointment at diminishing numbers of female applicants for jobs in Data.

      Her career started in 2000 when she embarked on a profession dedicated to talent and innovation with the leading recruitment firm, Datatech Analytics. With over two decades of unrivalled experience in the data industry, Roisin is recognised as a leading expert in talent acquisition and retention. Her endeavours with Women in Data have cemented her as an authority on gender representation in the world of data.

      Wind forward to 2022: the Women in Data community has grown to 25,000 members and the organisation’s influence is both broad and deep. Women in Data has become famous for its landmark annual events, which have grown in size and prestige year-on-year, as well as its year–round partner and member support, and its Twenty in Data and Technology annual spotlight on female trail-blazers and rising stars.

      Today, more insight is available into the barriers to entry that affect both young girls and women in leadership. Together with its partners, Women in Data is involved in practical working parties designed to have a measurable, positive impact on pressing issues such as sector entry, advancement, certification, pay and inclusion. Roisin has been recognised in DataIQ’s Top 100. She still leads Datatech’s operations, where she has happily witnessed a significant increase in applications from women for Data roles, and continues to build some of the UK’s most cutting-edge data teams.

      After more than 3 decades in the data and analytics industry, including supporting many Life Sciences and Pharma businesses, Fiona joined ‘the great resignation’ to find a role with purpose at its core.

      Joining Women in Data® gives her the opportunity to drive change and give back to the industry that has given so much to her. As partnerships director, she is developing our new propositions to ensure that they meet the needs of our partner organisations, and at the same time supporting our growing membership of 27,000 data, tech and analytics professionals. At the moment, her focus is firmly on partner engagement in the lead up to our Women in Data® flagship event in March 2024!

      When not at work you will find Fiona walking and travelling in the UK and beyond, as well as developing some of the new skills she picked up in the last few years.

      Juliette spent the first half of her career in sales & marketing roles in media, fashion and financial services.  She then moved into the world of customer data, digital, and strategy with Executive roles at Dunnhumby (part of Tesco) and ebay inc.  Creating financially impactful insight capability and customer culture change in these digital pure play and omni-channel environments. More recently She has been a Non- Executive director of HM Revenue & Customs and a Trustee of Versus Arthritis.  Currently she is an adviser on data, digital & Customer Strategy.  Her passion for the issues around Women’s health were stirred at Versus Arthritis where she became keenly aware that many diseases e.g. autoimmune diseases and osteoporosis disproportionately affect women.  She is the Deputy Chair of the Women In Data® Health and delighted to work with this group to enable better outcomes for women’s health.

      Katherine Church, Chief Digital Officer with 20 yrs experience designing and implementing scale digital transformation programmes across multiple sectors including the NHS where she led digital for an Integrated Care System during Covid.  She has a specific focus on women’s health and works with the NHS implementing digital pathways for women’s health as part of the Women’s Health Strategy.  She also works with femtech start and scale ups to help navigate the UK healthcare landscape and connect with growth opportunities.

      Katherine mentors women in tech and is on the board of Tech London Advocates Women in tech, advocating for equality for girls and women in data and tech careers.

      She has a fierce sense of injustice and passionately believes that the advantages she has been given as a white, straight, english speaking middle class woman obliges her to reach out, to connect and to do everything in my power to make change happen for all women.

      Jane leads the Data Institutions Programme at the Open Data Institute (ODI). The programme works with organisations to bring about new and improved ways of collecting, maintaining and sharing data responsibly. It does this through research, advisory services and projects, and works to encourage policy makers and funders to enable the creation of better data infrastructure to help realise the ODI’s vision of a world where data works for everyone. 

      In her previous role at the Data Science Campus at the Office for National Statistics, Jane worked on a mission to help organisations harness the transformative power of data for public good through building data science capability. She led the implementation of initiatives such as the Government Data Science Accelerator Programme and the Data Masterclass for Senior Leaders, and she led a cross-government partnership to nurture the vibrant data science practitioner community in UK government and public sector. Jane loves to get to the heart of a problem and tackle it through collaboration. In her life before her data mission, Jane led diverse programmes across the public and private sectors, including science and horticulture programmes for the Royal Botanic Gardens Kew, and branding and strategic communications for government, charity and cultural sectors. In her early career in the BBC, she devised production resource solutions across studios, post production and graphics.

      Jane believes that access to the right data has the power to create a better and more equitable world. She’s excited to be supporting the WiD Women’s Health initiative to find innovative avenues to do this in a trustworthy and responsible way. 

      My background is as an architect and construction lawyer, but over my career it has always been about project delivery and maximising opportunities. My particular areas of expertise are complex projects and change programmes; procurement; public policy; and customer service. I have moved into data over recent years to support organisations with harnessing the potential of their data. Data holds the key for all aspects of our lives in the 21st century. Well managed and accessible as appropriate, data supports both our work and our play, but poorly managed it holds us back and causes significant problems.

      Through senior roles in the Civil Service, I looked after operational delivery, portfolio and investment management and £multi-million transformation programmes, including global technology transformation programmes and modernising ways of working.

      I represent the UK as an estates expert at the Council of Europe and support them with data aspects of modernising their estate.

      Most recently, I have programme managed the delivery of the national cancer secure data environment for DATA-CAN and Health Data Research UK. This led to my current role in Leeds leading on delivery of the data strategy and data transformation programme.

      Meet Michelle, our go-to tech expert in women’s health! As the Lead Data Scientist at Lloyds Banking Group, she loves crunching data and turning them into strategic decisions. She has spent over 12 years deploying machine learning models into production. Michelle’s not just about algorithms; she’s also a community builder, having created a cool space for women in Python-based data science projects. Originally from Ireland, she’s now soaking in the London vibe, appreciating its culture and awesome artwork. Michelle brings a blend of expertise and a touch of Irish charm to the world of women’s health steerco.

      Priya is a Diversity & Inclusion (D&I) consultant with previous experience in technology consulting and financial services.

      She is currently the D&I Lead at Smart DCC, working as part of the Culture & Engagement team to build a long-term D&I roadmap. Alongside this, she is a consultant with Included where she has led projects on D&I strategies, data, leadership development, and organisational processes. She has worked with a wide range of clients, from global pharmaceuticals and national regulators to local non-profits. Priya is a contributing author to The Key to Inclusion (2022).

      Outside of work, she has a love of travelling, photography, and crime dramas. As an individual impacted by chronic gynae conditions, Priya is particularly passionate about supporting this agenda, and ensuring we are doing all that we can for the women of the future.